Education Faces of MLD

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MLD Videos

TIPS - Range of Motion

Lorelei Sandoval, National Tay-Sachs & Allied Diseases Association

This is a video produced by Dean Suhr for another organization, however, it applies to MLD patients as well. This video shows the different ways you can work with your child to keep their muscles relaxed, loose and not contracted depending on their age. It can also be a wonderful way to connect with your child through movement and touch. It may be helpful to share this with your care team of therapists for them to perhaps learn something new while working with your child.
43 min, ©2018

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